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Syndromes Without A Name (SWAN UK)

SWAN UK (Syndromes Without A Name) is a project run by Genetic Alliance UK specifically for families of children with special needs who do not have a specific diagnosis. Offering information and support to families, the project offers a friendly listening ear whilst…

The British Kidney Patient Association (BKPA)

The British Kidney Patient Association (BKPA) improves the lives of kidney patients with kidney disease by giving support, information and more grant aid than any other UK kidney charity. The charity helps kidney disease patients, families and kidney units…

Paediatric Community Dietitian

This service is provided by two teams of Registered Dietitians who offer assessment, treatment and advice to people requiring dietary modifications in order to maintain and promote optimum health. This service is for children aged 0-19 with developmental needs and registered…

Papworth Trust

Papworth Trust is a charity that supports disabled people and their carers with a range of services and advice. Their aim is to help disabled people to have equality, choice and independence in their lives.The charity describes itself as “pan-disability”, meaning it works…

Children of Deaf Adults (CODA)

Children of Deaf Adults (CODA) provides support, information and guidance to CODAs, their families and the wider community, including professionals, deaf parents, students and researchers, by planning events, activities and developing projects. The activities are not restricted to a specific age…

Mind - Self Harm

What is self-harm? Self-harm is when you hurt yourself as a way of dealing with very difficult feelings, old memories, or overwhelming situations and experiences. If you are thinking about stopping or reducing your self-harm, finding ways of helping yourself can feel very empowering. The website…

NSPCC – Self Harm

Are you concerned that someone is self-harming? This site can help you to  spot the signs of self harm and inform you what you can do to help. This service is to support you if you suspect that somebody you know is…

Sense

Sense is a national charity that supports and campaigns for children and adults who are deafblind or have sensory impairments. Sense offers high-quality, flexible services across the UK, using skilled staff and a dedicated network of volunteers. They work with a wide range of people who…

OASIS @ MAAP

The Online Asperger Syndrome Information and Support (OASIS) @ MAAP (Services for Autism and Asperger Syndrome) is an American website providing online information on autism, Aspergers and other spectrum disorders for families, individuals, and medical professionals. The website offers: articles, educational resources,  recommended reading, and moderated…
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Service children and young people, statutory assessments of Education Health and Care (EHC) needs

When a Service child or young person, 0-25 years old, requires a statutory assessment of their Education Health and Care (EHC) needs, the local authority must seek advice from the Children’s Education Advisory Service (CEAS).  CEAS is part of the Ministry…