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Ehlers-Danlos Support UK

Ehlers-Danlos Support UK (EDS UK) is a charity dedicated to providing support, raising awareness and improving the quality of life for people living with the Ehlers-Danlos Syndromes. The Ehlers-Danlos Syndromes (EDS) are a group of thirteen individual genetic conditions, all of which affect the body’s…

Young Epilepsy- Transition Support Programme

Young Epilepsy has a new project offering a FREE support and information service for 10-18 year olds with epilepsy living in London. If you are a young person with epilepsy or their parent and are looking for some support, advice or just someone to talk…

Young Epilepsy

Young Epilepsy is the national charity supporting children and young people aged 25 and under with epilepsy and associated conditions, as well as their families.  We exist to improve the lives of children and young people with the condition to enable them to fulfill their…

Healthcare Travel Costs Scheme

You may be able to claim a refund under the 'Healthcare Travel Costs Scheme' (HTCS) of the cost of travelling to hospital or other NHS premises for NHS-funded treatment or diagnostic test arranged by a doctor or dentist. To qualify for help with travel costs…

Syndromes Without A Name (SWAN UK)

SWAN UK (Syndromes Without A Name) is a project run by Genetic Alliance UK specifically for families of children with special needs who do not have a specific diagnosis. Offering information and support to families, the project offers a friendly listening ear whilst…

The British Kidney Patient Association (BKPA)

The British Kidney Patient Association (BKPA) improves the lives of kidney patients with kidney disease by giving support, information and more grant aid than any other UK kidney charity. The charity helps kidney disease patients, families and kidney units…

Paediatric Community Dietitian

This service is provided by two teams of Registered Dietitians who offer assessment, treatment and advice to people requiring dietary modifications in order to maintain and promote optimum health. This service is for children aged 0-19 with developmental needs and registered…
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Service children and young people, statutory assessments of Education Health and Care (EHC) needs

When a Service child or young person, 0-25 years old, requires a statutory assessment of their Education Health and Care (EHC) needs, the local authority must seek advice from the Children’s Education Advisory Service (CEAS).  CEAS is part of the Ministry…

Cystic Fibrosis

Cystic Fibrosis is the only UK wide charity making a daily difference to the lives of people with cystic fibrosis, and those who care for them. Through the helpline and grant programmes, they offer practical support for people with cystic fibrosis, and their families by;…